Yearly Archives: 2011

Chimp Speaks, Part II

Posted on December 16, 2011 by Jocelyn

This is the second half of the contribution my husband, Chimp, asked to make to the blog. Part I is here. Maybe you went to bed last night with the whole thing figured out, and you think you’ve written a … Continue reading →

Posted in Chimp, ME/CFS | Tagged | 23 Comments

Chimp Speaks, Part I

Posted on December 11, 2011 by Jocelyn

This is an entry by my husband, Chimp. No, I’m not actually married to a philosophizing simian – “Chimp” is his longtime internet handle. – Jocelyn Jocelyn asked me if I’d contribute something to No Poster Girl, and I wrote … Continue reading →

Posted in Chimp, ME/CFS | Tagged | 45 Comments

To Those Newly Diagnosed With ME/CFS: Four Things I Learned the Hard Way

Posted on November 30, 2011 by Jocelyn

I hit a nerve with my “Nothing” post about what I did (and mostly what I didn’t do) after I was diagnosed. And many of the reactions I heard from others touched on the number one, most important, know-this-if-nothing-else piece … Continue reading →

Posted in ME/CFS | Tagged , , , , | 83 Comments

Nothing

Posted on November 12, 2011 by Jocelyn

For every ailment under the sun There is a remedy, or there is none; If there be one, try to find it; If there be none, never mind it. -Mother Goose Rhyme What do you do when you’re diagnosed with … Continue reading →

Posted in ME/CFS | 52 Comments

A Rant About the Illness Narrative

Posted on October 13, 2011 by Jocelyn

Over the past seven years, I have had various people tell me, here and there, that they find me “brave” or “inspirational.” And it seems like the sicker I’ve gotten, the more I’ve heard it. I don’t want to sound … Continue reading →

Posted in Chimp, ME/CFS | Tagged , , , , , | 44 Comments

Further Adventures in IRIS

Posted on September 22, 2011 by Jocelyn

My first entry on this subject, “Everybody Gets Through IRIS,” is here, and a third, “The End of IRIS,” is here. My immune system is still freaking out for fun and profit. Yes, it’s true, we’ve reached the six-week mark … Continue reading →

Posted in ME/CFS | Tagged , , | 18 Comments

The Lightning Bug and The Lightning

Posted on August 31, 2011 by Jocelyn

“The difference between the almost right word & the right word is really a large matter–it’s the difference between the lightning bug and the lightning.” -Mark Twain A while back, I came across the ad at right via the Vintage … Continue reading →

Posted in ME/CFS | 19 Comments

“Everybody Gets Through IRIS.”

Posted on August 18, 2011 by Jocelyn

There’s a second entry on this topic, “Further Adventures in IRIS,” here, and a third, “The End of IRIS,” here. That’s what Dr. Cheney told me at my appointment in April. IRIS, approximately, is what happens when your immune system … Continue reading →

Posted in ME/CFS | Tagged , , , | 16 Comments

Managing the Quotidian

Posted on August 8, 2011 by Jocelyn

A few people have asked me what I do all day. What I do, of course, is tightly limited by my small store of energy. “Bedridden” describes me pretty well in general, but I do shift between bedroom and dayroom, … Continue reading →

Posted in ME/CFS | Tagged | 12 Comments

Voting in Vivint Gives Back: Conejo Valley Friendship Circle Disqualified

Posted on July 20, 2011 by Jocelyn

This is the fifth entry in a series about vote compensation in Vivint Gives Back. Here are entries one, two, three, and four. I found on rising this morning that half a dozen people had sent me the news that Conejo Valley Friendship Circle … Continue reading →

Posted in Contests | Tagged , , , , , , | 16 Comments