Search Results for: insomnia

My Weapons-Grade Insomnia, Part II

So…where were we? Ah, yes. Before the editorial expression of concern and the Chase debacle, we were talking about sleep. For years and years now, I’ve been progressively increasing the number and amount of drugs I take for sleep. Frankly, … Continue reading

Posted in ME/CFS | Tagged , , | 24 Comments

My Weapons-Grade Insomnia

This is the first of a couple entries about my ongoing struggle with insomnia. Part II is here. The insomnia is what’s going to eventually kill me. I know you’ve probably heard someone say, “Nobody ever died of insomnia,” but … Continue reading

Posted in ME/CFS | Tagged , , , | 23 Comments

Prandial Problems

I hated my mother’s bunny jello mold. She bought it before my brother or I were born, thinking that when she had kids, it would be fun to make them bunny-shaped jello. And it probably would have been, for most … Continue reading

Posted in Life Before, ME/CFS, Uncategorized | Tagged , , , , , , , , , , , , , , , | 32 Comments

My Worst Year: Theda and Thomas and Me

Trigger warning for discussion of suicide. This summer, two well-known ME patients, Theda Myint and Thomas Hennessey, took their lives. I didn’t know either of them personally. Theda was well-known through her “Help Theda” facebook page, and was a very … Continue reading

Posted in ME/CFS | Tagged , , , , , , , , , , , , , , | 66 Comments

The Post-Appointment Post, 2013, Part II

Part I is here. Nasal VIP wasn’t the only thing that Dr. Cheney and I talked about this year. I’m sharing this grab bag of questions and answers because I know I always learn from what other patients ask him. … Continue reading

Posted in ME/CFS | Tagged , , , , , , , , , , , , , , , , , , , , , , , | 15 Comments

The Post-Appointment Post, 2013, Part I

It’s taken me much longer than usual to write this post because I got the idea of transcribing the recording we made of the appointment as a way to help me write. We’ve made a recording every year, but this … Continue reading

Posted in ME/CFS | Tagged , , , , , , , , , | 17 Comments

Brain No Go So Good

“I’m writing an entry about my cognitive dysfunction, and I thought I’d ask you about whether there’s anything about it you notice. Wait, I asked you this last week, didn’t I?” “Yes. And I suppose that’s an anecdote in itself.” … Continue reading

Posted in ME/CFS | Tagged , , , , , , , , , , | 29 Comments

New Bottle Paranoia Syndrome

One of the things that consistently makes life more exciting around here is my case of New Bottle Paranoia Syndrome. My present state of NBPS has reached its current form because of a long seriesĀ of unhelpful surprises my body has … Continue reading

Posted in Life Before, ME/CFS, Uncategorized | Tagged , , , , , , , , , | 22 Comments

Gratitude

One of the more difficult things to deal with about being this ill is the feeling of uselessness imposed by my physical limits. Even as long as I’ve been ill, I’ve never quite gotten over the guilt of not being … Continue reading

Posted in Chimp, Life Before, ME/CFS | Tagged , , , , , , , , , | 23 Comments

Losing My Edge

(Lyrics here.) One day about three years into my illness, when I was still well enough to be working but sick enough to be doing so from home, I met my departing boss – let’s call him Brad – for … Continue reading

Posted in Life Before, ME/CFS | Tagged , , , , , , | 32 Comments