Tag Archives: Chimp

Losing My Voice

Posted on March 28, 2013 by

A conversation at our house recently: “So when you think of things that the illness has cost me, things that were a big part of my identity, things that I loved to do, what’s the first thing that comes to … Continue reading →

Posted in Life Before, ME/CFS | Tagged , , , , , , , , | 21 Comments

Brain No Go So Good

Posted on February 24, 2013 by

“I’m writing an entry about my cognitive dysfunction, and I thought I’d ask you about whether there’s anything about it you notice. Wait, I asked you this last week, didn’t I?” “Yes. And I suppose that’s an anecdote in itself.” … Continue reading →

Posted in ME/CFS | Tagged , , , , , , , , , , | 27 Comments

A Thousand Things

Posted on November 27, 2012 by

If you’re a healthy person, how many things do you think you do per day? Your to-do list at work might have a half-dozen things on it, but I’m talking about more than that. Maybe you run a few errands … Continue reading →

Posted in ME/CFS | Tagged , , , , , , , , , | 69 Comments

Gratitude

Posted on October 21, 2012 by

One of the more difficult things to deal with about being this ill is the feeling of uselessness imposed by my physical limits. Even as long as I’ve been ill, I’ve never quite gotten over the guilt of not being … Continue reading →

Posted in Chimp, Life Before, ME/CFS | Tagged , , , , , , , , , | 23 Comments

A Love Note to Congressman Daryl Metcalfe

Posted on September 29, 2012 by

“I don’t believe any legitimate voter that actually wants to exercise that right and takes on the according responsibility that goes with that right to secure their photo ID will be disenfranchised…[W]e have a lot of people out there that … Continue reading →

Posted in ME/CFS | Tagged , , , ,

One Foot in Front of The Other

Posted on July 22, 2012 by

I was once a runner. I wasn’t always. I took it up after I left NYU in 1995. I’d been teaching myself to cook at college, and turning out to be unfortunately, deliciously good at it, so the second half of … Continue reading →

Posted in Life Before, ME/CFS | Tagged , , , , , , , , | 30 Comments

Losing My Edge

Posted on June 30, 2012 by

(Lyrics here.) One day about three years into my illness, when I was still well enough to be working but sick enough to be doing so from home, I met my departing boss – let’s call him Brad – for … Continue reading →

Posted in Life Before, ME/CFS | Tagged , , , , , , | 32 Comments

…a little better all the time…

Posted on May 29, 2012 by

Memorial Day weekend is my sickiversary. Eight years today. Things are looking up, though – I think I’m doing better now than any point since the end of 2007. Among the indications of improvement: I’ve been playing Words With Friends … Continue reading →

Posted in ME/CFS | Tagged , , , , , | 45 Comments

A Crash Course in Healthcare

Posted on May 10, 2012 by

I’ve written before about the series of events that ended in me falling ill, but one thing I haven’t told you about is the transition after that – the transition from being a healthy person to being a chronicially ill … Continue reading →

Posted in Life Before, ME/CFS | Tagged , , , , | 11 Comments

Fear Itself

Posted on April 19, 2012 by

I have two major phobias that I’ve had as long as I can remember: A rational one (as phobias go, at least) and an irrational one. I have a fair number of minor ones, too, but I’m going to keep … Continue reading →

Posted in Life Before | Tagged , , , , , | 38 Comments