Tag Archives: history

Losing My Voice

Posted on March 28, 2013 by

A conversation at our house recently: “So when you think of things that the illness has cost me, things that were a big part of my identity, things that I loved to do, what’s the first thing that comes to … Continue reading →

Posted in Life Before, ME/CFS | Tagged , , , , , , , , | 21 Comments

Brain No Go So Good

Posted on February 24, 2013 by

“I’m writing an entry about my cognitive dysfunction, and I thought I’d ask you about whether there’s anything about it you notice. Wait, I asked you this last week, didn’t I?” “Yes. And I suppose that’s an anecdote in itself.” … Continue reading →

Posted in ME/CFS | Tagged , , , , , , , , , , | 29 Comments

Thin Thighs in 35 Years

Posted on July 1, 2011 by

I always wanted to have great legs. The picture at right is of my mom (center), her sisters, and me, in 1993. As you can see, my mom has great legs. Her three sisters have great legs. Their older brother … Continue reading →

Posted in ME/CFS | Tagged , , , , , | 28 Comments

How It Began – Part II: Chicago

Posted on March 20, 2011 by

This is the second entry in my ME/CFS “origin story.” Here are Part I, Part III, and Part IV. The rest of the winter of 2003-4 passed uneventfully. Come spring, I was in Chicago for the Food Marketing Institute trade show for work … Continue reading →

Posted in ME/CFS | Tagged , , , , , | 13 Comments

How it Began – Part I: The Flu Shot

Posted on March 19, 2011 by

This is the first entry in my ME/CFS “origin story.” Here are Part II,  Part III, and Part IV. You say you want to spend the winter in Firenze You’re so afraid to catch a dose of influenza You live your life like … Continue reading →

Posted in ME/CFS | Tagged , , , | 16 Comments

The Boring Stuff: What is ME/CFS?

Posted on January 29, 2011 by

We should probably have this straight before we go any further. What is ME/CFS? It’s a neuroimmune illness that affects pretty much all bodily systems. The acronym ME/CFS stands for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Let’s take that bit by bit: … Continue reading →

Posted in Boring, ME/CFS | Tagged , , , | 20 Comments