Tag Archives: Mom

Losing My Voice

Posted on March 28, 2013 by

A conversation at our house recently: “So when you think of things that the illness has cost me, things that were a big part of my identity, things that I loved to do, what’s the first thing that comes to … Continue reading →

Posted in Life Before, ME/CFS | Tagged , , , , , , , , | 21 Comments

New Bottle Paranoia Syndrome

Posted on January 31, 2013 by

One of the things that consistently makes life more exciting around here is my case of New Bottle Paranoia Syndrome. My present state of NBPS has reached its current form because of a long series of unhelpful surprises my body has … Continue reading →

Posted in Life Before, ME/CFS, Uncategorized | Tagged , , , , , , , , , | 18 Comments

Gratitude

Posted on October 21, 2012 by

One of the more difficult things to deal with about being this ill is the feeling of uselessness imposed by my physical limits. Even as long as I’ve been ill, I’ve never quite gotten over the guilt of not being … Continue reading →

Posted in Chimp, Life Before, ME/CFS | Tagged , , , , , , , , , | 23 Comments

Fear Itself

Posted on April 19, 2012 by

I have two major phobias that I’ve had as long as I can remember: A rational one (as phobias go, at least) and an irrational one. I have a fair number of minor ones, too, but I’m going to keep … Continue reading →

Posted in Life Before | Tagged , , , , , | 38 Comments

The Post-Appointment Post, 2012

Posted on April 5, 2012 by

I’ve been away from the blog because of my annual appointment with Dr. Cheney on March 20th. First I was trying to rest up to get ready for it, then I was trying to recover from it. This was the … Continue reading →

Posted in ME/CFS | Tagged , , , , , , , , | 31 Comments

Thin Thighs in 35 Years

Posted on July 1, 2011 by

I always wanted to have great legs. The picture at right is of my mom (center), her sisters, and me, in 1993. As you can see, my mom has great legs. Her three sisters have great legs. Their older brother … Continue reading →

Posted in ME/CFS | Tagged , , , , , | 28 Comments

The Post-Appointment Post

Posted on April 16, 2011 by

The information contained in this post is my interpretation of Dr. Cheney’s recommendations for me. This is not medical advice. Please don’t change your treatment plan based on anything in this post. The previous two times we’ve done the drive … Continue reading →

Posted in ME/CFS | Tagged , , , , , , , , , | 16 Comments

How It Began – Part II: Chicago

Posted on March 20, 2011 by

This is the second entry in my ME/CFS “origin story.” Here are Part I, Part III, and Part IV. The rest of the winter of 2003-4 passed uneventfully. Come spring, I was in Chicago for the Food Marketing Institute trade show for work … Continue reading →

Posted in ME/CFS | Tagged , , , , , | 13 Comments