Have a Question? Drop Me a Line
Like me on facebook!
Twitter Updates
- @canaryfilm @Tanya_Marlow Thanks for thinking of me, Tanya. Jennifer, I'm in Western PA, near Pittsburgh. Do DM me for more info. 1 week ago
- @JnnBth Love it! 1 month ago
- Welcome to No Poster Girl, KDKA radio listeners! If you’re new to the blog, here are some of… wp.me/s1j3vO-1627 1 month ago
- A life of singing and not #singing: Losing My Voice from #mecfs wp.me/p1j3vO-pf 1 month ago
- @AWelsh_Writer Much easier on the eyes, yes! 1 month ago
-
Recent Posts
Archives
- April 2013
- March 2013
- February 2013
- January 2013
- December 2012
- November 2012
- October 2012
- September 2012
- July 2012
- June 2012
- May 2012
- April 2012
- February 2012
- January 2012
- December 2011
- November 2011
- October 2011
- September 2011
- August 2011
- July 2011
- June 2011
- May 2011
- April 2011
- March 2011
- February 2011
- January 2011
Tags
artesunate boring cdc CFIDS Association of America Chase cheating cheese Cheney Chicago Chimp contests crash diagnosis fever fingerprint destruction freakshow GcMAF gels history how it began inosine IRIS meds Mom music nagalase name negative PACE Post-Exertional Malaise q&a sleep stress Swagbucks symptoms vertigo Vivint vote votes voting weight weight loss work WPI XMRVCategories
Blogroll
- 4 Walls and a view
- Alysons CFIDS Blog
- AshySheela
- Behind the Surface
- blog Wormwood
- Blue Coffee Mug
- Cathi Carol
- CFS Chronicles
- CFS Patient Advocate
- CFS Untied
- Chaos to Cosmos
- Chronically Me
- Chronicles of the Reluctant Bike Commuter
- Circustan
- Cocoon Life
- Daily Life with Hidden Chronic Illnesses
- Dannilion
- Dreams at Stake
- Elettaria
- Empty Thoughts Rewritten
- GcMAF and M.E.
- Green Words Growing
- Groves Media
- Herdisms Blog
- Hope for FM and CFIDS Sufferers
- Housebound n' Gay
- I Give You My Word
- Idiosyncratic Eye
- Into the Unknown Grey
- It's Just M.E.
- Jo Blogs
- Jody's Blog
- Just My Honest Opinion
- L'Ombre de mon Ombre
- Learning to Live With CFS
- Lemon-Aide
- Life As We Know It
- Life Like This
- Liverpool Leftovers
- Living the CFS Life
- M.E. and My Battles
- Maija's CFS-ME Site
- ME/CFS Self-Help Guru
- ME/CFS Warrior
- Mimi and Tilly
- My CFS Life
- Newly Nerfed
- Occupy CFS
- One Agent for Change
- One Life in the Shadows
- Peggy Munson
- Pictures and Pillows
- Quixotic ME Blog
- Rachel Creative
- Rag and Bone Shop of the Heart
- Reading the Signs
- Reflective Travails
- Renee's Reflections on Life
- Richard Lucas
- Sarah's World
- Sick and Tired
- Slightly Alive
- Speak Up About ME
- Stonebird
- Sustainably Creative
- The Clockwork Dodo
- The Corner Room
- The Damn Chronic Situation
- The Kafka Pandemic
- The Thing With Feathers
- The Tinkerbelle and Hummingbird ME Blog
- The Voice Within
- The WaterSide
- Thorns and Gold
- Thoughts About ME
- Twenty Years and Counting
- Valerie Elliot Smith
- Velo-Gubbed Legs
- Verlorene Zeit
- We Can Still Blog!
- White Dolphin
- Wolfdreams
- X Rx
- X-treme Denial
Meta
Tag Archives: sleep
Losing My Edge
(Lyrics here.) One day about three years into my illness, when I was still well enough to be working but sick enough to be doing so from home, I met my departing boss – let’s call him Brad – for … Continue reading
Posted in Life Before, ME/CFS
Tagged Chimp, confidence, crash, dizziness, food, sleep, work
32 Comments
The Post-Appointment Post, 2012
I’ve been away from the blog because of my annual appointment with Dr. Cheney on March 20th. First I was trying to rest up to get ready for it, then I was trying to recover from it. This was the … Continue reading
My Weapons-Grade Insomnia, Part II
So…where were we? Ah, yes. Before the editorial expression of concern and the Chase debacle, we were talking about sleep. For years and years now, I’ve been progressively increasing the number and amount of drugs I take for sleep. Frankly, … Continue reading
My Weapons-Grade Insomnia
This is the first of a couple entries about my ongoing struggle with insomnia. Part II is here. The insomnia is what’s going to eventually kill me. I know you’ve probably heard someone say, “Nobody ever died of insomnia,” but … Continue reading
None Detected
Just heard Chimp gasp in the other room while opening the mail. My XMRV results are back. I came back “none detected” for culture and for serum antibodies. I’m pretty disappointed, although I know, of course, that this doesn’t mean … Continue reading
Posted in House & Home, ME/CFS, Uncategorized
Tagged artesunate, Chimp, negative, sleep, XMRV
5 Comments
How It Began – Part II: Chicago
This is the second entry in my ME/CFS “origin story.” Here are Part I, Part III, and Part IV. The rest of the winter of 2003-4 passed uneventfully. Come spring, I was in Chicago for the Food Marketing Institute trade show for work … Continue reading
One Pill Makes You Larger; 56 Make You a Freak
Before I got sick (I have a feeling I might start a lot of posts this way), I never took cold medicine, and hardly ever took an ibuprofen. Above is my daily diet of tablets, capsules, elixirs, gels, and sprays … Continue reading
Zeo One; Jocelyn Zero
Last night I tried out my gift of the Zeo Sleep Coach for the first time. It didn’t go so well. This thing tracks your brainwaves over the course of the night to show you what’s going on with your sleep. … Continue reading
