Hi there, and welcome to No Poster Girl. I’m Jocelyn. You may remember me from my food blog She Spills the Beans, or my long-running LiveJournal, but that was friends-locked and read by about a dozen people, really.
My intention here is to write openly and honestly about what my life is like now, with severe ME/CFS. I developed the illness in 2004 and I’ve been bedridden since December 2007.
I’m not cooking these days; I’m not working any more, either; I’m lying around all day eating bonbons. Well, not strictly bonbons, mostly dark chocolate, and not strictly all day, mostly for breakfast. But I am strictly lying around, because my cardiac output is too low to allow me to stand up like a normal person. Ever have all the blood in your body in your feet? It doesn’t feel so good.
Anyhow, I figure I might as well be forthcoming about what it’s like to have severe ME/CFS. What do I have to lose, except for, uh, my health insurance coverage and my SSDI payments?
But really, what else?