Tag Archives: work


Living with a disease of unknown etiology is, let’s say, problematic. The lack of a well-defined cause stymies efforts toward a cure, and opens up a gaping void that gets filled, at best, with wide-ranging science, but more prosaically with … Continue reading

Posted in Life Before, ME/CFS | Tagged , , , , , , , , , , , , , , , , , | 15 Comments

Brain No Go So Good

“I’m writing an entry about my cognitive dysfunction, and I thought I’d ask you about whether there’s anything about it you notice. Wait, I asked you this last week, didn’t I?” “Yes. And I suppose that’s an anecdote in itself.” … Continue reading

Posted in ME/CFS | Tagged , , , , , , , , , , | 29 Comments

And So This is Christmas

Warning: This video contains a lot of disturbing imagery.  I know I’m late with this post. Would you believe that trying to have Christmas with the tiny store of energy ME/CFS allows me caused me to run late on writing … Continue reading

Posted in Life Before, ME/CFS | Tagged , , , , | 10 Comments


One of the more difficult things to deal with about being this ill is the feeling of uselessness imposed by my physical limits. Even as long as I’ve been ill, I’ve never quite gotten over the guilt of not being … Continue reading

Posted in Chimp, Life Before, ME/CFS | Tagged , , , , , , , , , | 23 Comments

A Love Note to Congressman Daryl Metcalfe

“I don’t believe any legitimate voter that actually wants to exercise that right and takes on the according responsibility that goes with that right to secure their photo ID will be disenfranchised…[W]e have a lot of people out there that … Continue reading

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Losing My Edge

(Lyrics here.) One day about three years into my illness, when I was still well enough to be working but sick enough to be doing so from home, I met my departing boss – let’s call him Brad – for … Continue reading

Posted in Life Before, ME/CFS | Tagged , , , , , , | 32 Comments