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Monthly Archives: January 2011
The Boring Stuff: What is ME/CFS?
We should probably have this straight before we go any further. What is ME/CFS? It’s a neuroimmune illness that affects pretty much all bodily systems. The acronym ME/CFS stands for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Let’s take that bit by … Continue reading
One Pill Makes You Larger; 56 Make You a Freak
Before I got sick (I have a feeling I might start a lot of posts this way), I never took cold medicine, and hardly ever took an ibuprofen. Above is my daily diet of tablets, capsules, elixirs, gels, and sprays … Continue reading
Zeo One; Jocelyn Zero
Last night I tried out my gift of the Zeo Sleep Coach for the first time. It didn’t go so well. This thing tracks your brainwaves over the course of the night to show you what’s going on with your sleep. … Continue reading
Questions & Answers: How it Feels
An old friend asked me recently, “I still don’t really know the depths of how bad you can feel. What are most days like?” Here’s my answer. Maybe this will give you some insight: Most of the time I lie … Continue reading
Questions & Answers: One Fine Day
This question & answer moved over from my formspring account. This question was originally asked in December 2010. If you woke up one morning to find yourself miraculously healed, what would you do? The first thing I’d do would be … Continue reading
Questions & Answers: Where Did You Get It?
This question & answer moved over from my formspring account. This question was originally asked in September 2010. Do you know how you got it, if it is a retrovirus? If it’s too personal for you to discuss it, say … Continue reading
Questions & Answers: Current Treatment
This question & answer moved over from my formspring account. This question was originally asked in September 2010. Now that there’s a (somewhat) official name, what is happening with treatment? There’s already been some in vitro testing in which AZT … Continue reading
Questions & Answers: ME/CFS vs. Fibromyalgia
This question & answer moved over from my formspring account. What are the differences between CFS (or GRV?) and fibromyalgia? I’m not an expert on this; I have ME/CFS, but not fibro, so I’ve read far less about the latter. … Continue reading
Questions & Answers: Alphabet Soup
This question & answer moved over from my formspring account. So what’s the alphabet soup of your disease about? There are a lot of names. There are. Let’s work backward, shall we? The most recent positive paper (Alter/Lo) found the … Continue reading
Why No Poster Girl?
I am No Poster Girl in that: I didn’t ask to have this illness, and I truly don’t want to be its poster girl. Who wants to be terribly sick and have their most notable characteristic be that they’re the … Continue reading
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No Poster Girl 