Monthly Archives: January 2011

The Boring Stuff: What is ME/CFS?

  We should probably have this straight before we go any further. What is ME/CFS? It’s a neuroimmune illness that affects pretty much all bodily systems. The acronym ME/CFS stands for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Let’s take that bit by … Continue reading

Posted in Boring, ME/CFS | Tagged , , , | 24 Comments

One Pill Makes You Larger; 56 Make You a Freak

Before I got sick (I have a feeling I might start a lot of posts this way), I never took cold medicine, and hardly ever took an ibuprofen. Above is my daily diet of tablets, capsules, elixirs, gels, and sprays … Continue reading

Posted in ME/CFS | Tagged , , , | 24 Comments

Zeo One; Jocelyn Zero

Last night I tried out my gift of the Zeo Sleep Coach for the first time. It didn’t go so well. This thing tracks your brainwaves over the course of the night to show you what’s going on with your sleep. … Continue reading

Posted in ME/CFS | Tagged , | 10 Comments

Questions & Answers: How it Feels

An old friend asked me recently, “I still don’t really know the depths of how bad you can feel. What are most days like?” Here’s my answer. Maybe this will give you some insight: Most of the time I lie … Continue reading

Posted in ME/CFS, q&a | Tagged | 4 Comments

Questions & Answers: One Fine Day

This question & answer moved over from my formspring account. This question was  originally asked in December 2010. If you woke up one morning to find yourself miraculously healed, what would you do? The first thing I’d do would be … Continue reading

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Questions & Answers: Where Did You Get It?

This question & answer moved over from my formspring account. This question was  originally asked in September 2010. Do you know how you got it, if it is a retrovirus? If it’s too personal for you to discuss it, say … Continue reading

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Questions & Answers: Current Treatment

This question & answer moved over from my formspring account. This question was  originally asked in September 2010. Now that there’s a (somewhat) official name, what is happening with treatment? There’s already been some in vitro testing in which AZT … Continue reading

Posted in ME/CFS, q&a | Tagged | 1 Comment