Monthly Archives: January 2011

The Boring Stuff: What is ME/CFS?

Posted on January 29, 2011 by

  We should probably have this straight before we go any further. What is ME/CFS? It’s a neuroimmune illness that affects pretty much all bodily systems. The acronym ME/CFS stands for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Let’s take that bit by … Continue reading →

Posted in Boring, ME/CFS | Tagged , , , | 24 Comments

One Pill Makes You Larger; 56 Make You a Freak

Posted on January 28, 2011 by

Before I got sick (I have a feeling I might start a lot of posts this way), I never took cold medicine, and hardly ever took an ibuprofen. Above is my daily diet of tablets, capsules, elixirs, gels, and sprays … Continue reading →

Posted in ME/CFS | Tagged , , , | 24 Comments

Zeo One; Jocelyn Zero

Posted on January 27, 2011 by

Last night I tried out my gift of the Zeo Sleep Coach for the first time. It didn’t go so well. This thing tracks your brainwaves over the course of the night to show you what’s going on with your sleep. … Continue reading →

Posted in ME/CFS | Tagged , | 10 Comments

Questions & Answers: How it Feels

Posted on January 25, 2011 by

An old friend asked me recently, “I still don’t really know the depths of how bad you can feel. What are most days like?” Here’s my answer. Maybe this will give you some insight: Most of the time I lie … Continue reading →

Posted in ME/CFS, q&a | Tagged | 4 Comments

Questions & Answers: One Fine Day

Posted on January 22, 2011 by

This question & answer moved over from my formspring account. This question was  originally asked in December 2010. If you woke up one morning to find yourself miraculously healed, what would you do? The first thing I’d do would be … Continue reading →

Posted in ME/CFS, q&a | Tagged | 2 Comments

Questions & Answers: Where Did You Get It?

Posted on January 22, 2011 by

This question & answer moved over from my formspring account. This question was  originally asked in September 2010. Do you know how you got it, if it is a retrovirus? If it’s too personal for you to discuss it, say … Continue reading →

Posted in ME/CFS, q&a | Tagged | 1 Comment

Questions & Answers: Current Treatment

Posted on January 22, 2011 by

This question & answer moved over from my formspring account. This question was  originally asked in September 2010. Now that there’s a (somewhat) official name, what is happening with treatment? There’s already been some in vitro testing in which AZT … Continue reading →

Posted in ME/CFS, q&a | Tagged | 1 Comment

Questions & Answers: ME/CFS vs. Fibromyalgia

Posted on January 22, 2011 by

This question & answer moved over from my formspring account. What are the differences between CFS (or GRV?) and fibromyalgia? I’m not an expert on this; I have ME/CFS, but not fibro, so I’ve read far less about the latter. … Continue reading →

Posted in ME/CFS, q&a | Tagged | 3 Comments

Questions & Answers: Alphabet Soup

Posted on January 22, 2011 by

This question & answer moved over from my formspring account. So what’s the alphabet soup of your disease about? There are a lot of names. There are. Let’s work backward, shall we? The most recent positive paper (Alter/Lo) found the … Continue reading →

Posted in ME/CFS, q&a | Tagged | 5 Comments

Why No Poster Girl?

Posted on January 21, 2011 by

I am No Poster Girl in that: I didn’t ask to have this illness, and I truly don’t want to be its poster girl. Who wants to be terribly sick and have their most notable characteristic be that they’re the … Continue reading →

Posted in Uncategorized | 17 Comments