Tag Archives: Mom

The Lace of Life

I was thinking, while we were in Asheville, about Dresden lace figurines. They’re porcelain figurines decorated with very realistic-looking lace, which is created by dipping cotton lace in porcelain and applying it to the figurine. The cloth burns off in … Continue reading

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Good Days and Bad Days with ME/CFS

Inspired by Change4ME Au’s Good Day/Bad Day series, I thought I would take good day/bad day shots of my own. So here is a little look at each, although as with almost everything in ME/CFS, it’s more complicated than it … Continue reading

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Prandial Problems

I hated my mother’s bunny jello mold. She bought it before my brother or I were born, thinking that when she had kids, it would be fun to make them bunny-shaped jello. And it probably would have been, for most … Continue reading

Posted in Life Before, ME/CFS, Uncategorized | Tagged , , , , , , , , , , , , , , , | 32 Comments

My Worst Year: Theda and Thomas and Me

Trigger warning for discussion of suicide. This summer, two well-known ME patients, Theda Myint and Thomas Hennessey, took their lives. I didn’t know either of them personally. Theda was well-known through her “Help Theda” facebook page, and was a very … Continue reading

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Losing My Voice

A conversation at our house recently: “So when you think of things that the illness has cost me, things that were a big part of my identity, things that I loved to do, what’s the first thing that comes to … Continue reading

Posted in Life Before, ME/CFS | Tagged , , , , , , , , | 22 Comments

New Bottle Paranoia Syndrome

One of the things that consistently makes life more exciting around here is my case of New Bottle Paranoia Syndrome. My present state of NBPS has reached its current form because of a long seriesĀ of unhelpful surprises my body has … Continue reading

Posted in Life Before, ME/CFS, Uncategorized | Tagged , , , , , , , , , | 23 Comments

Gratitude

One of the more difficult things to deal with about being this ill is the feeling of uselessness imposed by my physical limits. Even as long as I’ve been ill, I’ve never quite gotten over the guilt of not being … Continue reading

Posted in Chimp, Life Before, ME/CFS | Tagged , , , , , , , , , | 23 Comments