Tag Archives: Mom

The Lace of Life

Posted on March 31, 2014 by Jocelyn

I was thinking, while we were in Asheville, about Dresden lace figurines. They’re porcelain figurines decorated with very realistic-looking lace, which is created by dipping cotton lace in porcelain and applying it to the figurine. The cloth burns off in … Continue reading →

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Good Days and Bad Days with ME/CFS

Posted on January 31, 2014 by Jocelyn

Inspired by Change4ME Au’s Good Day/Bad Day series, I thought I would take good day/bad day shots of my own. So here is a little look at each, although as with almost everything in ME/CFS, it’s more complicated than it … Continue reading →

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Prandial Problems

Posted on November 5, 2013 by Jocelyn

I hated my mother’s bunny jello mold. She bought it before my brother or I were born, thinking that when she had kids, it would be fun to make them bunny-shaped jello. And it probably would have been, for most … Continue reading →

Posted in Life Before, ME/CFS, Uncategorized | Tagged , , , , , , , , , , , , , , , | 33 Comments

My Worst Year: Theda and Thomas and Me

Posted on September 29, 2013 by Jocelyn

Trigger warning for discussion of suicide. This summer, two well-known ME patients, Theda Myint and Thomas Hennessey, took their lives. I didn’t know either of them personally. Theda was well-known through her “Help Theda” facebook page, and was a very … Continue reading →

Posted in ME/CFS | Tagged , , , , , , , , , , , , , , | 65 Comments

Losing My Voice

Posted on March 28, 2013 by Jocelyn

A conversation at our house recently: “So when you think of things that the illness has cost me, things that were a big part of my identity, things that I loved to do, what’s the first thing that comes to … Continue reading →

Posted in Life Before, ME/CFS | Tagged , , , , , , , , | 22 Comments

New Bottle Paranoia Syndrome

Posted on January 31, 2013 by Jocelyn

One of the things that consistently makes life more exciting around here is my case of New Bottle Paranoia Syndrome. My present state of NBPS has reached its current form because of a long series of unhelpful surprises my body has … Continue reading →

Posted in Life Before, ME/CFS, Uncategorized | Tagged , , , , , , , , , | 23 Comments

Gratitude

Posted on October 21, 2012 by Jocelyn

One of the more difficult things to deal with about being this ill is the feeling of uselessness imposed by my physical limits. Even as long as I’ve been ill, I’ve never quite gotten over the guilt of not being … Continue reading →

Posted in Chimp, Life Before, ME/CFS | Tagged , , , , , , , , , | 23 Comments

Fear Itself

Posted on April 19, 2012 by Jocelyn

I have two major phobias that I’ve had as long as I can remember: A rational one (as phobias go, at least) and an irrational one. I have a fair number of minor ones, too, but I’m going to keep … Continue reading →

Posted in Life Before | Tagged , , , , , | 38 Comments

The Post-Appointment Post, 2012

Posted on April 5, 2012 by Jocelyn

I’ve been away from the blog because of my annual appointment with Dr. Cheney on March 20th. First I was trying to rest up to get ready for it, then I was trying to recover from it. This was the … Continue reading →

Posted in ME/CFS | Tagged , , , , , , , , | 33 Comments

Thin Thighs in 35 Years

Posted on July 1, 2011 by Jocelyn

I always wanted to have great legs. The picture at right is of my mom (center), her sisters, and me, in 1993. As you can see, my mom has great legs. Her three sisters have great legs. Their older brother … Continue reading →

Posted in ME/CFS | Tagged , , , , , | 28 Comments