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Tag Archives: Mom
The Lace of Life
I was thinking, while we were in Asheville, about Dresden lace figurines. They’re porcelain figurines decorated with very realistic-looking lace, which is created by dipping cotton lace in porcelain and applying it to the figurine. The cloth burns off in … Continue reading
Posted in ME/CFS
Tagged Asheville, bath, bedridden, books, Chimp, Christmas, constraints, crash, dancing, dining out, Dresden lace, exercise, family, fashion, figurines, food, fresno, history, love, makeup, Mom, music, nature, outdoors, parties, Post-Exertional Malaise, pressure sensitivity, travel, vegetarianism, walking, wildflowers
17 Comments
Good Days and Bad Days with ME/CFS
Inspired by Change4ME Au’s Good Day/Bad Day series, I thought I would take good day/bad day shots of my own. So here is a little look at each, although as with almost everything in ME/CFS, it’s more complicated than it … Continue reading
Posted in ME/CFS
Tagged Chimp, clothing, food poisoning, fried, good day/bad day, hair, makeup, Mom, photos, pressure sensitivity, sleep
18 Comments
Prandial Problems
I hated my mother’s bunny jello mold. She bought it before my brother or I were born, thinking that when she had kids, it would be fun to make them bunny-shaped jello. And it probably would have been, for most … Continue reading
Posted in Life Before, ME/CFS, Uncategorized
Tagged beef, bunny, chicken, childhood, Chimp, Dad, fish, food, histamine, jello, lamb, meat, Mom, sleep, vegetarianism, Wahls protocol
33 Comments
My Worst Year: Theda and Thomas and Me
Trigger warning for discussion of suicide. This summer, two well-known ME patients, Theda Myint and Thomas Hennessey, took their lives. I didn’t know either of them personally. Theda was well-known through her “Help Theda” facebook page, and was a very … Continue reading
Posted in ME/CFS
Tagged bedridden, blood, cancer, charity air ambulance, Cheney, Chimp, crash, HGH, history, Mom, pheochromocytoma, side effects, sleep, suicide, Xyrem
65 Comments
Losing My Voice
A conversation at our house recently: “So when you think of things that the illness has cost me, things that were a big part of my identity, things that I loved to do, what’s the first thing that comes to … Continue reading
Posted in Life Before, ME/CFS
Tagged childhood, Chimp, history, Mom, music, performance, singing, stress, symptoms
22 Comments
New Bottle Paranoia Syndrome
One of the things that consistently makes life more exciting around here is my case of New Bottle Paranoia Syndrome. My present state of NBPS has reached its current form because of a long series of unhelpful surprises my body has … Continue reading
Posted in Life Before, ME/CFS, Uncategorized
Tagged ADD, anxiety, depression, freakshow, meds, Mom, panic attacks, Prozac, Ritalin, side effects
23 Comments
Gratitude
One of the more difficult things to deal with about being this ill is the feeling of uselessness imposed by my physical limits. Even as long as I’ve been ill, I’ve never quite gotten over the guilt of not being … Continue reading
Posted in Chimp, Life Before, ME/CFS
Tagged anniversary, arthritis, Chimp, crash, fairness, gratitude, love, Mom, wedding, work
23 Comments
Fear Itself
I have two major phobias that I’ve had as long as I can remember: A rational one (as phobias go, at least) and an irrational one. I have a fair number of minor ones, too, but I’m going to keep … Continue reading
The Post-Appointment Post, 2012
I’ve been away from the blog because of my annual appointment with Dr. Cheney on March 20th. First I was trying to rest up to get ready for it, then I was trying to recover from it. This was the … Continue reading
Thin Thighs in 35 Years
I always wanted to have great legs. The picture at right is of my mom (center), her sisters, and me, in 1993. As you can see, my mom has great legs. Her three sisters have great legs. Their older brother … Continue reading
No Poster Girl 