Have a Question? Drop Me a Line
-
Join 2,190 other subscribers
Like me on facebook!
Twitter Updates
Tweets by nopostergirl-
Recent Posts
Archives
- December 2022
- August 2022
- May 2022
- April 2022
- March 2022
- February 2022
- March 2021
- October 2020
- May 2020
- April 2020
- August 2016
- August 2014
- July 2014
- June 2014
- May 2014
- March 2014
- February 2014
- January 2014
- December 2013
- November 2013
- September 2013
- August 2013
- July 2013
- June 2013
- May 2013
- April 2013
- March 2013
- February 2013
- January 2013
- December 2012
- November 2012
- October 2012
- September 2012
- July 2012
- June 2012
- May 2012
- April 2012
- February 2012
- January 2012
- December 2011
- November 2011
- October 2011
- September 2011
- August 2011
- July 2011
- June 2011
- May 2011
- April 2011
- March 2011
- February 2011
- January 2011
- ADD
- anxiety
- artesunate
- bath
- bedridden
- blood
- cdc
- Chase
- cheating
- cheese
- Cheney
- Chicago
- childhood
- Chimp
- Christmas
- cognitive dysfunction
- constraints
- contests
- crash
- Dad
- daily routine
- diagnosis
- exercise
- family
- fashion
- fever
- fingerprint destruction
- food
- freakshow
- fresno
- garden
- GcMAF
- gels
- glutathione
- histamine
- history
- how it began
- IRIS
- love
- magnesium
- makeup
- meds
- Mom
- music
- nagalase
- name
- nature
- negative
- oxygen
- P5P
- pacing
- PCOS
- Post-Exertional Malaise
- pressure sensitivity
- q&a
- Sam-e
- side effects
- sleep
- stress
- Swagbucks
- symptoms
- vegetarianism
- vertigo
- VIP
- Vivint
- vote
- votes
- voting
- walking
- weight
- weight loss
- wildflowers
- work
- WPI
- XMRV
Categories
Blogroll
- 4 Walls and a view
- Alysons CFIDS Blog
- Around with the Hound
- AshySheela
- Behind the Surface
- blog Wormwood
- Blue Coffee Mug
- Cathi Carol
- CFS Chronicles
- CFS Patient Advocate
- CFS Untied
- Chaos to Cosmos
- Chronically Me
- ChronicCarly
- Chronicles of the Reluctant Bike Commuter
- Circustan
- Cocoon Life
- Constant Fucking Shit
- Daily Life with Hidden Chronic Illnesses
- Dannilion
- Dead Men Don't Snore
- Documenting M.E.
- Dreams at Stake
- Elettaria
- Empty Thoughts Rewritten
- GcMAF and M.E.
- Get Up and Go Guru
- Green Words Growing
- Groves Media
- Hayley-Eszti
- Herdisms Blog
- Hope for FM and CFIDS Sufferers
- Housebound n' Gay
- I Give You My Word
- Idiosyncratic Eye
- Into the Unknown Grey
- It's Just M.E.
- Jess' CFS Blog
- Jo Blogs
- Jody's Blog
- Just ME
- Just My Honest Opinion
- Katherine's Wild Mind
- L'Ombre de mon Ombre
- Learning to Live With CFS
- Lemon-Aide
- Life As We Know It
- Life Like This
- Liverpool Leftovers
- Living the CFS Life
- M.E. and My Battles
- Maija's CFS-ME Site
- MD with ME
- ME/CFS Self-Help Guru
- ME/CFS Warrior
- Meg Says
- Mimi and Tilly
- My CFS Life
- My Chronic Life Journey
- My Journey Through M.E.
- Newly Nerfed
- Occupy CFS
- One Agent for Change
- One Life in the Shadows
- Pajama Daze
- Peggy Munson
- Pictures and Pillows
- Quixotic ME Blog
- Rachel Creative
- Rag and Bone Shop of the Heart
- Reading the Signs
- Reflective Travails
- Renee's Reflections on Life
- Richard Lucas
- Sarah's World
- Search for the Cure: My Healing Journey
- Sick and Tired
- Slightly Alive
- Speak Up About ME
- Stonebird
- Sustainably Creative
- Take These Broken Wings
- The Clockwork Dodo
- The Corner Room
- The Damn Chronic Situation
- The Kafka Pandemic
- The Thing With Feathers
- The Tinkerbelle and Hummingbird ME Blog
- The Voice Within
- The WaterSide
- Thorns and Gold
- Thoughts About ME
- Twenty Years and Counting
- Valerie Elliot Smith
- Velo-Gubbed Legs
- Verlorene Zeit
- We Can Still Blog!
- What Will Happen to M.E.?
- White Dolphin
- Wolfdreams
- X Rx
- X-treme Denial
Meta
Tag Archives: Cheney
Homemade Sublingual Magnesium Spray and Topical Magnesium Oil
My sleep regimen includes some unusual homemade magnesium preparations, and I thought other people with myalgic encephalomyelitis might like to know how to make them. Dr. Cheney was a big believer in magnesium – for energy production, for brain function, … Continue reading
Dr. Cheney’s Change of Heart: Low-Dose Nocturnal Oxygen in Myalgic Encephalomyelitis
This post is based on years of recordings/notes from my visits with Dr. Cheney and his public talks. I’ve done the best I can to present this clearly and simply, but as he’s no longer here for me to run … Continue reading
Histamine Sensitivity and ME/CFS: A Plan of Attack
[Note added 3/31/22: This is a complex post with a long series of exchanges, but it doesn’t include some factors we didn’t know at the time. Because of improperly installed drywall, our house had a mold problem behind the walls … Continue reading
Posted in ME/CFS
Tagged 23andMe, alpha lipoic acid, antihistamines, B12, Brazil nuts, Cheney, colostrum, DAO, doxepin, fennel, folapro, food, Gabapentin, gels, glutamate, glutathione, hawthorn, headache, Histame, histamine, ImmunoPro, LDN, magnesium, MAO, mirtazapine, olive oil, P5P, quercetin, Sam-e, Seroquel, sleep, turmeric, VIP, wormwood
24 Comments
My Worst Year: Theda and Thomas and Me
Trigger warning for discussion of suicide. This summer, two well-known ME patients, Theda Myint and Thomas Hennessey, took their lives. I didn’t know either of them personally. Theda was well-known through her “Help Theda” facebook page, and was a very … Continue reading
Posted in ME/CFS
Tagged bedridden, blood, cancer, charity air ambulance, Cheney, Chimp, crash, HGH, history, Mom, pheochromocytoma, side effects, sleep, suicide, Xyrem
65 Comments
The Post-Appointment Post, 2013, Part II
Part I is here. Nasal VIP wasn’t the only thing that Dr. Cheney and I talked about this year. I’m sharing this grab bag of questions and answers because I know I always learn from what other patients ask him. … Continue reading
Posted in ME/CFS
Tagged adrenal support, adrenaline, anatabine, blood, Cheney, colloidal silver, corona radii, Cortef, crimson crescent, fever, fingerprint destruction, glutathione, high sulfite, leaky gut, methylation, oxygen, P5P, panic attack, Romberg, Sam-e, selenium, sleep, SOD, supply/demand mismatch
19 Comments
The Post-Appointment Post, 2013, Part I
It’s taken me much longer than usual to write this post because I got the idea of transcribing the recording we made of the appointment as a way to help me write. We’ve made a recording every year, but this … Continue reading
…a little better all the time…
Memorial Day weekend is my sickiversary. Eight years today. Things are looking up, though – I think I’m doing better now than any point since the end of 2007. Among the indications of improvement: I’ve been playing Words With Friends … Continue reading
The Post-Appointment Post, 2012
I’ve been away from the blog because of my annual appointment with Dr. Cheney on March 20th. First I was trying to rest up to get ready for it, then I was trying to recover from it. This was the … Continue reading
The End of IRIS
Well that sucked. Some of you may remember that I’ve been dealing with IRIS caused by my experimental treatment, GcMAF (see my previous posts, “Everybody Gets Through IRIS” and “Further Adventures in IRIS”, and if you want a brief explanation of … Continue reading
“Everybody Gets Through IRIS.”
There’s a second entry on this topic, “Further Adventures in IRIS,” here, and a third, “The End of IRIS,” here. That’s what Dr. Cheney told me at my appointment in April. IRIS, approximately, is what happens when your immune system … Continue reading