Tag Archives: Cheney

Homemade Sublingual Magnesium Spray and Topical Magnesium Oil

Posted on April 28, 2022 by Jocelyn

My sleep regimen includes some unusual homemade magnesium preparations, and I thought other people with myalgic encephalomyelitis might like to know how to make them. Dr. Cheney was a big believer in magnesium – for energy production, for brain function, … Continue reading →

Posted in ME/CFS | Tagged , , , , , , | 3 Comments

Dr. Cheney’s Change of Heart: Low-Dose Nocturnal Oxygen in Myalgic Encephalomyelitis

Posted on April 14, 2022 by Jocelyn

This post is based on years of recordings/notes from my visits with Dr. Cheney and his public talks. I’ve done the best I can to present this clearly and simply, but as he’s no longer here for me to run … Continue reading →

Posted in ME/CFS | Tagged , , , | 3 Comments

Histamine Sensitivity and ME/CFS: A Plan of Attack

Posted on December 23, 2013 by Jocelyn

[Note added 3/31/22: This is a complex post with a long series of exchanges, but it doesn’t include some factors we didn’t know at the time. Because of improperly installed drywall, our house had a mold problem behind the walls … Continue reading →

Posted in ME/CFS | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | 24 Comments

My Worst Year: Theda and Thomas and Me

Posted on September 29, 2013 by Jocelyn

Trigger warning for discussion of suicide. This summer, two well-known ME patients, Theda Myint and Thomas Hennessey, took their lives. I didn’t know either of them personally. Theda was well-known through her “Help Theda” facebook page, and was a very … Continue reading →

Posted in ME/CFS | Tagged , , , , , , , , , , , , , , | 65 Comments

The Post-Appointment Post, 2013, Part II

Posted on June 16, 2013 by Jocelyn

Part I is here. Nasal VIP wasn’t the only thing that Dr. Cheney and I talked about this year. I’m sharing this grab bag of questions and answers because I know I always learn from what other patients ask him. … Continue reading →

Posted in ME/CFS | Tagged , , , , , , , , , , , , , , , , , , , , , , , | 19 Comments

The Post-Appointment Post, 2013, Part I

Posted on May 30, 2013 by Jocelyn

It’s taken me much longer than usual to write this post because I got the idea of transcribing the recording we made of the appointment as a way to help me write. We’ve made a recording every year, but this … Continue reading →

Posted in ME/CFS | Tagged , , , , , , , , , | 17 Comments

…a little better all the time…

Posted on May 29, 2012 by Jocelyn

Memorial Day weekend is my sickiversary. Eight years today. Things are looking up, though – I think I’m doing better now than any point since the end of 2007. Among the indications of improvement: I’ve been playing Words With Friends … Continue reading →

Posted in ME/CFS | Tagged , , , , , | 45 Comments

The Post-Appointment Post, 2012

Posted on April 5, 2012 by Jocelyn

I’ve been away from the blog because of my annual appointment with Dr. Cheney on March 20th. First I was trying to rest up to get ready for it, then I was trying to recover from it. This was the … Continue reading →

Posted in ME/CFS | Tagged , , , , , , , , | 33 Comments

The End of IRIS

Posted on February 26, 2012 by Jocelyn

Well that sucked. Some of you may remember that I’ve been dealing with IRIS caused by my experimental treatment, GcMAF (see my previous posts, “Everybody Gets Through IRIS” and “Further Adventures in IRIS”, and if you want a brief explanation of … Continue reading →

Posted in ME/CFS | Tagged , , , , | 33 Comments

“Everybody Gets Through IRIS.”

Posted on August 18, 2011 by Jocelyn

There’s a second entry on this topic, “Further Adventures in IRIS,” here, and a third, “The End of IRIS,” here. That’s what Dr. Cheney told me at my appointment in April. IRIS, approximately, is what happens when your immune system … Continue reading →

Posted in ME/CFS | Tagged , , , | 16 Comments