Tag Archives: Cheney

Histamine Sensitivity and ME/CFS: A Plan of Attack

When I realized I was dealing with a histamine intolerance, and started looking around on the web about how to treat it, I felt totally bewildered and overwhelmed. There is an enormous amount of conflicting information, and I felt bad … Continue reading

Posted in ME/CFS | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | 19 Comments

My Worst Year: Theda and Thomas and Me

Trigger warning for discussion of suicide. This summer, two well-known ME patients, Theda Myint and Thomas Hennessey, took their lives. I didn’t know either of them personally. Theda was well-known through her “Help Theda” facebook page, and was a very … Continue reading

Posted in ME/CFS | Tagged , , , , , , , , , , , , , , | 65 Comments

The Post-Appointment Post, 2013, Part II

Part I is here. Nasal VIP wasn’t the only thing that Dr. Cheney and I talked about this year. I’m sharing this grab bag of questions and answers because I know I always learn from what other patients ask him. … Continue reading

Posted in ME/CFS | Tagged , , , , , , , , , , , , , , , , , , , , , , , | 19 Comments

The Post-Appointment Post, 2013, Part I

It’s taken me much longer than usual to write this post because I got the idea of transcribing the recording we made of the appointment as a way to help me write. We’ve made a recording every year, but this … Continue reading

Posted in ME/CFS | Tagged , , , , , , , , , | 17 Comments

…a little better all the time…

Memorial Day weekend is my sickiversary. Eight years today. Things are looking up, though – I think I’m doing better now than any point since the end of 2007. Among the indications of improvement: I’ve been playing Words With Friends … Continue reading

Posted in ME/CFS | Tagged , , , , , | 45 Comments

The Post-Appointment Post, 2012

I’ve been away from the blog because of my annual appointment with Dr. Cheney on March 20th. First I was trying to rest up to get ready for it, then I was trying to recover from it. This was the … Continue reading

Posted in ME/CFS | Tagged , , , , , , , , | 33 Comments

The End of IRIS

Well that sucked. Some of you may remember that I’ve been dealing with IRIS caused by my experimental treatment, GcMAF (see my previous posts, “Everybody Gets Through IRIS” and “Further Adventures in IRIS”, and if you want a brief explanation of … Continue reading

Posted in ME/CFS | Tagged , , , , | 33 Comments

“Everybody Gets Through IRIS.”

There’s a second entry on this topic, “Further Adventures in IRIS,” here, and a third, “The End of IRIS,” here. That’s what Dr. Cheney told me at my appointment in April. IRIS, approximately, is what happens when your immune system … Continue reading

Posted in ME/CFS | Tagged , , , | 16 Comments

Managing the Quotidian

A few people have asked me what I do all day. What I do, of course, is tightly limited by my small store of energy. “Bedridden” describes me pretty well in general, but I do shift between bedroom and dayroom, … Continue reading

Posted in ME/CFS | Tagged | 12 Comments

My Weapons-Grade Insomnia

This is the first of a couple entries about my ongoing struggle with insomnia. Part II is here. The insomnia is what’s going to eventually kill me. I know you’ve probably heard someone say, “Nobody ever died of insomnia,” but … Continue reading

Posted in ME/CFS | Tagged , , , | 23 Comments