Have a Question? Drop Me a Line
Like me on facebook!
Twitter Updates
- Pressing questions from the strange country that is #MyalgicEncephalomyelitis payback: "When did this room get skew… twitter.com/i/web/status/1… 1 week ago
- RT @thrasherxy: An ableist culture that glorifies "beating" and "getting over" sickness has ushered in the grotesque carnival we are going… 2 weeks ago
- Rattle & …umm nopostergirl.com/2020/10/06/rat… 2 weeks ago
- And if you don't and you want it replaced, you have to pay out of pocket to replace it if you want it before the da… twitter.com/i/web/status/1… 2 weeks ago
- [I don't know if it's against the law everywhere, but in the U.S. state where I live, it's against the law for phar… twitter.com/i/web/status/1… 2 weeks ago
-
Recent Posts
Archives
- October 2020
- May 2020
- April 2020
- August 2016
- August 2014
- July 2014
- June 2014
- May 2014
- March 2014
- February 2014
- January 2014
- December 2013
- November 2013
- September 2013
- August 2013
- July 2013
- June 2013
- May 2013
- April 2013
- March 2013
- February 2013
- January 2013
- December 2012
- November 2012
- October 2012
- September 2012
- July 2012
- June 2012
- May 2012
- April 2012
- February 2012
- January 2012
- December 2011
- November 2011
- October 2011
- September 2011
- August 2011
- July 2011
- June 2011
- May 2011
- April 2011
- March 2011
- February 2011
- January 2011
- ADD
- anxiety
- artesunate
- bath
- bedridden
- blood
- boring
- cdc
- CFIDS Association of America
- Chase
- cheating
- cheese
- Cheney
- Chicago
- childhood
- Chimp
- Christmas
- cognitive dysfunction
- constraints
- contests
- crash
- Dad
- daily routine
- diagnosis
- exercise
- family
- fashion
- fever
- fingerprint destruction
- food
- freakshow
- fresno
- garden
- GcMAF
- gels
- glutathione
- histamine
- history
- how it began
- IRIS
- love
- magnesium
- makeup
- meds
- Mom
- music
- nagalase
- name
- nature
- negative
- P5P
- PCOS
- Post-Exertional Malaise
- pressure sensitivity
- q&a
- Sam-e
- side effects
- sleep
- stress
- Swagbucks
- symptoms
- vegetarianism
- vertigo
- VIP
- Vivint
- vote
- votes
- voting
- walking
- weight
- weight loss
- wildflowers
- work
- WPI
- XMRV
Categories
Blogroll
- 4 Walls and a view
- Alysons CFIDS Blog
- Around with the Hound
- AshySheela
- Behind the Surface
- blog Wormwood
- Blue Coffee Mug
- Cathi Carol
- CFS Chronicles
- CFS Patient Advocate
- CFS Untied
- Chaos to Cosmos
- Chronically Me
- ChronicCarly
- Chronicles of the Reluctant Bike Commuter
- Circustan
- Cocoon Life
- Constant Fucking Shit
- Daily Life with Hidden Chronic Illnesses
- Dannilion
- Dead Men Don't Snore
- Documenting M.E.
- Dreams at Stake
- Elettaria
- Empty Thoughts Rewritten
- GcMAF and M.E.
- Get Up and Go Guru
- Green Words Growing
- Groves Media
- Hayley-Eszti
- Herdisms Blog
- Hope for FM and CFIDS Sufferers
- Housebound n' Gay
- I Give You My Word
- Idiosyncratic Eye
- Into the Unknown Grey
- It's Just M.E.
- Jess' CFS Blog
- Jo Blogs
- Jody's Blog
- Just ME
- Just My Honest Opinion
- Katherine's Wild Mind
- L'Ombre de mon Ombre
- Learning to Live With CFS
- Lemon-Aide
- Life As We Know It
- Life Like This
- Liverpool Leftovers
- Living the CFS Life
- M.E. and My Battles
- Maija's CFS-ME Site
- MD with ME
- ME/CFS Self-Help Guru
- ME/CFS Warrior
- Meg Says
- Mimi and Tilly
- My CFS Life
- My Chronic Life Journey
- My Journey Through M.E.
- Newly Nerfed
- Occupy CFS
- One Agent for Change
- One Life in the Shadows
- Pajama Daze
- Peggy Munson
- Pictures and Pillows
- Quixotic ME Blog
- Rachel Creative
- Rag and Bone Shop of the Heart
- Reading the Signs
- Reflective Travails
- Renee's Reflections on Life
- Richard Lucas
- Sarah's World
- Search for the Cure: My Healing Journey
- Sick and Tired
- Slightly Alive
- Speak Up About ME
- Stonebird
- Sustainably Creative
- Take These Broken Wings
- The Clockwork Dodo
- The Corner Room
- The Damn Chronic Situation
- The Kafka Pandemic
- The Thing With Feathers
- The Tinkerbelle and Hummingbird ME Blog
- The Voice Within
- The WaterSide
- Thorns and Gold
- Thoughts About ME
- Twenty Years and Counting
- Valerie Elliot Smith
- Velo-Gubbed Legs
- Verlorene Zeit
- We Can Still Blog!
- What Will Happen to M.E.?
- White Dolphin
- Wolfdreams
- X Rx
- X-treme Denial
Meta
-
Tag Archives: bedridden
The Lace of Life
I was thinking, while we were in Asheville, about Dresden lace figurines. They’re porcelain figurines decorated with very realistic-looking lace, which is created by dipping cotton lace in porcelain and applying it to the figurine. The cloth burns off in … Continue reading
Posted in ME/CFS
Tagged Asheville, bath, bedridden, books, Chimp, Christmas, constraints, crash, dancing, dining out, Dresden lace, exercise, family, fashion, figurines, food, fresno, history, love, makeup, Mom, music, nature, outdoors, parties, Post-Exertional Malaise, pressure sensitivity, travel, vegetarianism, walking, wildflowers
17 Comments
My Worst Year: Theda and Thomas and Me
Trigger warning for discussion of suicide. This summer, two well-known ME patients, Theda Myint and Thomas Hennessey, took their lives. I didn’t know either of them personally. Theda was well-known through her “Help Theda” facebook page, and was a very … Continue reading
Posted in ME/CFS
Tagged bedridden, blood, cancer, charity air ambulance, Cheney, Chimp, crash, HGH, history, Mom, pheochromocytoma, side effects, sleep, suicide, Xyrem
65 Comments
