Tag Archives: Post-Exertional Malaise

Black Dress Day 2014

Posted on August 8, 2014 by Jocelyn

How to accomplish a Black Dress* Day photo for severe ME if you have severe ME yourself and are 98% bedridden (may not be possible for all such folks): Use a morning’s energy to try on three dresses. Pick one … Continue reading →

Posted in ME/CFS | Tagged , , , , , , , , | 28 Comments

The Lace of Life

Posted on March 31, 2014 by Jocelyn

I was thinking, while we were in Asheville, about Dresden lace figurines. They’re porcelain figurines decorated with very realistic-looking lace, which is created by dipping cotton lace in porcelain and applying it to the figurine. The cloth burns off in … Continue reading →

Posted in ME/CFS | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | 17 Comments

The CFIDS Association of America’s Foot-in-Mouth Disease

Posted on February 25, 2011 by Jocelyn

The CFIDS Association of America should be having a banner week. Last Friday, the scandalous PACE trial, promoting cognitive behavioral therapy and graded exercise therapy for ME/CFS, came out in The Lancet, which was an opportunity to come out swinging if ever … Continue reading →

Posted in ME/CFS | Tagged , , | 20 Comments