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- @AppleSupport Bummed I still can't delete Health. Mine's not good and it's not fun being constantly reminded by my phone. #mecfs 8 months ago
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Tag Archives: Post-Exertional Malaise
Black Dress Day 2014
How to accomplish a Black Dress* Day photo for severe ME if you have severe ME yourself and are 98% bedridden (may not be possible for all such folks): Use a morning’s energy to try on three dresses. Pick one … Continue reading
Posted in ME/CFS
Tagged awareness, Black Dress Day, Chimp, clothes, energy, fashion, makeup, Post-Exertional Malaise, shoes
28 Comments
The Lace of Life
I was thinking, while we were in Asheville, about Dresden lace figurines. They’re porcelain figurines decorated with very realistic-looking lace, which is created by dipping cotton lace in porcelain and applying it to the figurine. The cloth burns off in … Continue reading
Posted in ME/CFS
Tagged Asheville, bath, bedridden, books, Chimp, Christmas, constraints, crash, dancing, dining out, Dresden lace, exercise, family, fashion, figurines, food, fresno, history, love, makeup, Mom, music, nature, outdoors, parties, Post-Exertional Malaise, pressure sensitivity, travel, vegetarianism, walking, wildflowers
17 Comments
The CFIDS Association of America’s Foot-in-Mouth Disease
The CFIDS Association of America should be having a banner week. Last Friday, the scandalous PACE trial, promoting cognitive behavioral therapy and graded exercise therapy for ME/CFS, came out in The Lancet, which was an opportunity to come out swinging if ever … Continue reading
