Tag Archives: crash

On One Decade In

Posted on June 6, 2014 by Jocelyn

Note: This entry is pretty much one big whine. When you’ve been sick for ten years, you get a coupon in the mail that entitles you to one 1800-word whine. I usually try to be at least somewhat upbeat and hopeful on … Continue reading →

Posted in ME/CFS | Tagged , , , , , , | 62 Comments

The Lace of Life

Posted on March 31, 2014 by Jocelyn

I was thinking, while we were in Asheville, about Dresden lace figurines. They’re porcelain figurines decorated with very realistic-looking lace, which is created by dipping cotton lace in porcelain and applying it to the figurine. The cloth burns off in … Continue reading →

Posted in ME/CFS | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | 17 Comments

Hindsight

Posted on February 28, 2014 by Jocelyn

Living with a disease of unknown etiology is, let’s say, problematic. The lack of a well-defined cause stymies efforts toward a cure, and opens up a gaping void that gets filled, at best, with wide-ranging science, but more prosaically with … Continue reading →

Posted in Life Before, ME/CFS | Tagged , , , , , , , , , , , , , , , , , | 15 Comments

My Worst Year: Theda and Thomas and Me

Posted on September 29, 2013 by Jocelyn

Trigger warning for discussion of suicide. This summer, two well-known ME patients, Theda Myint and Thomas Hennessey, took their lives. I didn’t know either of them personally. Theda was well-known through her “Help Theda” facebook page, and was a very … Continue reading →

Posted in ME/CFS | Tagged , , , , , , , , , , , , , , | 65 Comments

Gratitude

Posted on October 21, 2012 by Jocelyn

One of the more difficult things to deal with about being this ill is the feeling of uselessness imposed by my physical limits. Even as long as I’ve been ill, I’ve never quite gotten over the guilt of not being … Continue reading →

Posted in Chimp, Life Before, ME/CFS | Tagged , , , , , , , , , | 23 Comments

Losing My Edge

Posted on June 30, 2012 by Jocelyn

(Lyrics here.) One day about three years into my illness, when I was still well enough to be working but sick enough to be doing so from home, I met my departing boss – let’s call him Brad – for … Continue reading →

Posted in Life Before, ME/CFS | Tagged , , , , , , | 32 Comments

How it Began – Part IV: The Crash and The Aftermath

Posted on April 24, 2011 by Jocelyn

This is the final entry in my ME/CFS “origin story.” Here are Part I, Part II, and Part III. We arrived back in California on Thursday night. I had already planned to take Friday off to recuperate from the trip. Saturday, May … Continue reading →

Posted in ME/CFS | Tagged , , , , , | 27 Comments