Tag Archives: diagnosis

On One Decade In

Note: This entry is pretty much one big whine. When you’ve been sick for ten years, you get a coupon in the mail that entitles you to one 1800-word whine. I usually try to be at least somewhat upbeat and hopeful on … Continue reading

Posted in ME/CFS | Tagged , , , , , , | 61 Comments

Hindsight

Living with a disease of unknown etiology is, let’s say, problematic. The lack of a well-defined cause stymies efforts toward a cure, and opens up a gaping void that gets filled, at best, with wide-ranging science, but more prosaically with … Continue reading

Posted in Life Before, ME/CFS | Tagged , , , , , , , , , , , , , , , , , | 15 Comments

A Crash Course in Healthcare

I’ve written before about the series of events that ended in me falling ill, but one thing I haven’t told you about is the transition after that – the transition from being a healthy person to being a chronicially ill … Continue reading

Posted in Life Before, ME/CFS | Tagged , , , , | 13 Comments

To Those Newly Diagnosed With ME/CFS: Four Things I Learned the Hard Way

I hit a nerve with my “Nothing” post about what I did (and mostly what I didn’t do) after I was diagnosed. And many of the reactions I heard from others touched on the number one, most important, know-this-if-nothing-else piece … Continue reading

Posted in ME/CFS | Tagged , , , , | 83 Comments