Tag Archives: sleep

Evaluating Carbon Dioxide at Home with an Aranet4 in Myalgic Encephalomyelitis

Posted on December 3, 2022 by Jocelyn

This fall, I acquired an Aranet4 CO2 monitor. It’s been illuminating to use and has helped me improve a little. Continue reading →

Posted in House & Home, ME/CFS | Tagged , , , , , | 1 Comment

Homemade Sublingual Magnesium Spray and Topical Magnesium Oil

Posted on April 28, 2022 by Jocelyn

My sleep regimen includes some unusual homemade magnesium preparations, and I thought other people with myalgic encephalomyelitis might like to know how to make them. Dr. Cheney was a big believer in magnesium – for energy production, for brain function, … Continue reading →

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Dr. Cheney’s Change of Heart: Low-Dose Nocturnal Oxygen in Myalgic Encephalomyelitis

Posted on April 14, 2022 by Jocelyn

This post is based on years of recordings/notes from my visits with Dr. Cheney and his public talks. I’ve done the best I can to present this clearly and simply, but as he’s no longer here for me to run … Continue reading →

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Good Days and Bad Days with ME/CFS

Posted on January 31, 2014 by Jocelyn

Inspired by Change4ME Au’s Good Day/Bad Day series, I thought I would take good day/bad day shots of my own. So here is a little look at each, although as with almost everything in ME/CFS, it’s more complicated than it … Continue reading →

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Histamine Sensitivity and ME/CFS: A Plan of Attack

Posted on December 23, 2013 by Jocelyn

[Note added 3/31/22: This is a complex post with a long series of exchanges, but it doesn’t include some factors we didn’t know at the time. Because of improperly installed drywall, our house had a mold problem behind the walls … Continue reading →

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Prandial Problems

Posted on November 5, 2013 by Jocelyn

I hated my mother’s bunny jello mold. She bought it before my brother or I were born, thinking that when she had kids, it would be fun to make them bunny-shaped jello. And it probably would have been, for most … Continue reading →

Posted in Life Before, ME/CFS, Uncategorized | Tagged , , , , , , , , , , , , , , , | 33 Comments

My Worst Year: Theda and Thomas and Me

Posted on September 29, 2013 by Jocelyn

Trigger warning for discussion of suicide. This summer, two well-known ME patients, Theda Myint and Thomas Hennessey, took their lives. I didn’t know either of them personally. Theda was well-known through her “Help Theda” facebook page, and was a very … Continue reading →

Posted in ME/CFS | Tagged , , , , , , , , , , , , , , | 65 Comments

The Post-Appointment Post, 2013, Part II

Posted on June 16, 2013 by Jocelyn

Part I is here. Nasal VIP wasn’t the only thing that Dr. Cheney and I talked about this year. I’m sharing this grab bag of questions and answers because I know I always learn from what other patients ask him. … Continue reading →

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The Post-Appointment Post, 2013, Part I

Posted on May 30, 2013 by Jocelyn

It’s taken me much longer than usual to write this post because I got the idea of transcribing the recording we made of the appointment as a way to help me write. We’ve made a recording every year, but this … Continue reading →

Posted in ME/CFS | Tagged , , , , , , , , , | 18 Comments

Losing My Edge

Posted on June 30, 2012 by Jocelyn

(Lyrics here.) One day about three years into my illness, when I was still well enough to be working but sick enough to be doing so from home, I met my departing boss – let’s call him Brad – for … Continue reading →

Posted in Life Before, ME/CFS | Tagged , , , , , , | 32 Comments