Author Archives: Jocelyn

The Fact of Fingerprints

Posted on February 27, 2011 by Jocelyn

Is this a Paul Simon song, or is it a Los Lobos song? Who can say? Of all the symptoms I’ve experienced over the past six years, fingerprint destruction has to be the weirdest. I first heard it mentioned as … Continue reading →

Posted in ME/CFS | Tagged , | 33 Comments

Fever! (Ba-da-bump)

Posted on February 26, 2011 by Jocelyn

If you’ve never seen Rita Moreno and Animal’s version of “Fever” before, enjoy. I’ve had a fever for five days now. It’s nothing major thus far – 99.0 is as high as it’s gotten – but I usually run around 97.5. … Continue reading →

Posted in ME/CFS | Tagged , , , | 3 Comments

The CFIDS Association of America’s Foot-in-Mouth Disease

Posted on February 25, 2011 by Jocelyn

The CFIDS Association of America should be having a banner week. Last Friday, the scandalous PACE trial, promoting cognitive behavioral therapy and graded exercise therapy for ME/CFS, came out in The Lancet, which was an opportunity to come out swinging if ever … Continue reading →

Posted in ME/CFS | Tagged , , | 20 Comments

Fighting the PACE

Posted on February 23, 2011 by Jocelyn

Katie Couric is supposed to be doing a report on ME/CFS tonight on the CBS Evening News. The community is worried b/c the scandalous PACE trial of CBT and graded exercise, run by UK psychiatrist Simon Wessely, who has been … Continue reading →

Posted in Uncategorized | 19 Comments

Nest Feathers

Posted on February 13, 2011 by Jocelyn

We spend a lot of time in the house. Me, because I have to; Chimp, because he’s taking care of me, and because he likes to be around me. So we have been working on making it a pleasant place … Continue reading →

Posted in House & Home, ME/CFS | Tagged | 5 Comments

Laura Hillenbrand: Unbroken & “A Sudden Illness”

Posted on February 8, 2011 by Jocelyn

Edit: Laura Hillenbrand tells me via Facebook that she’s never stopped speaking out about the illness. I have clearly missed those interviews, so I’ve corrected this entry. Laura Hillenbrand – author of Seabiscuit and, most recently, Unbroken – is interviewed in … Continue reading →

Posted in ME/CFS | 8 Comments

Bang.

Posted on February 7, 2011 by Jocelyn

Well, I suppose that’s the right way to start off an ME/CFS blog, isn’t it, with a big flaming crash? This crash has the same cause as every one I’ve had since the end of 2007: Not sleeping. After the … Continue reading →

Posted in ME/CFS | 7 Comments

The Boring Stuff: What is ME/CFS?

Posted on January 29, 2011 by Jocelyn

  We should probably have this straight before we go any further. What is ME/CFS? It’s a neuroimmune illness that affects pretty much all bodily systems. The acronym ME/CFS stands for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Let’s take that bit by … Continue reading →

Posted in Boring, ME/CFS | Tagged , , , | 24 Comments

One Pill Makes You Larger; 56 Make You a Freak

Posted on January 28, 2011 by Jocelyn

Before I got sick (I have a feeling I might start a lot of posts this way), I never took cold medicine, and hardly ever took an ibuprofen. Above is my daily diet of tablets, capsules, elixirs, gels, and sprays … Continue reading →

Posted in ME/CFS | Tagged , , , | 24 Comments

Zeo One; Jocelyn Zero

Posted on January 27, 2011 by Jocelyn

Last night I tried out my gift of the Zeo Sleep Coach for the first time. It didn’t go so well. This thing tracks your brainwaves over the course of the night to show you what’s going on with your sleep. … Continue reading →

Posted in ME/CFS | Tagged , | 10 Comments