Author Archives: Jocelyn

Oops! I Forgot I Had a Blog.

That is my favorite fake excuse for abandoning you that I’ve been able to come up with since I last posted here two years ago. The truth, of course, is that much more prosaic and usual reason why you stop … Continue reading

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Black Dress Day 2014

How to accomplish a Black Dress* Day photo for severe ME if you have severe ME yourself and are 98% bedridden (may not be possible for all such folks): Use a morning’s energy to try on three dresses. Pick one … Continue reading

Posted in ME/CFS | Tagged , , , , , , , , | 24 Comments

The Body and My Body

If asked to guess what holiday is hardest for me, I don’t think Independence Day would top most people’s lists – but it is. Maybe when I say that, though, it comes into focus – really, you couldn’t design a … Continue reading

Posted in Life Before, ME/CFS | Tagged , , , , , , , , , , , , | 10 Comments

On One Decade In

Note: This entry is pretty much one big whine. When you’ve been sick for ten years, you get a coupon in the mail that entitles you to one 1800-word whine. I usually try to be at least somewhat upbeat and hopeful on … Continue reading

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My Gallery of Dead Possessions

Inspired by Patrick’s post about items he can no longer use because of ME/CFS, for our awareness day, I thought I’d share my own little list. Chimp helped me out enormously by taking most of the photos you’ll see here. … Continue reading

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The Lace of Life

I was thinking, while we were in Asheville, about Dresden lace figurines. They’re porcelain figurines decorated with very realistic-looking lace, which is created by dipping cotton lace in porcelain and applying it to the figurine. The cloth burns off in … Continue reading

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Hindsight

Living with a disease of unknown etiology is, let’s say, problematic. The lack of a well-defined cause stymies efforts toward a cure, and opens up a gaping void that gets filled, at best, with wide-ranging science, but more prosaically with … Continue reading

Posted in Life Before, ME/CFS | Tagged , , , , , , , , , , , , , , , , , | 15 Comments