Author Archives: Jocelyn

Homemade Sublingual Magnesium Spray and Topical Magnesium Oil

My sleep regimen includes some unusual homemade magnesium preparations, and I thought other people with myalgic encephalomyelitis might like to know how to make them. Dr. Cheney was a big believer in magnesium – for energy production, for brain function, … Continue reading

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Dr. Cheney’s Change of Heart: Low-Dose Nocturnal Oxygen in Myalgic Encephalomyelitis

This post is based on years of recordings/notes from my visits with Dr. Cheney and his public talks. I’ve done the best I can to present this clearly and simply, but as he’s no longer here for me to run … Continue reading

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The Power of Pyridostigmine

There’s good news herein about a new med, but I’m going to do a little rationalizing first of why I’d never tried it. People with ME will understand why I didn’t try to switch practitioners while Dr. Cheney was alive. … Continue reading

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A Problem I Didn’t Want Back

CW: Diet culture BS, weight loss/gain, dieting talk.  A few weeks ago, a new doctor asked, “So has your weight always been pretty stable?” I stammered something out, but when Chimp and I were back at home, I said, “That … Continue reading

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Vax Attack

Last summer, we learned from Chimp’s institution that he was going to be expected to teach in person during the fall semester, possibly-immunologically-vulnerable-spouse be damned. The good things about it, at least, were these: He’s on the fourth floor of … Continue reading

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That Silver-Haired Daddy of Mine

My dad died suddenly last summer, five days before my birthday.  I received a lot of kind expressions of sympathy, and to some people who remarked on the suddenness of his death, I said, “It’s okay; I’ve really been getting … Continue reading

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Cruel (Cruel) Summer

I’m usually on edge Memorial Day weekend. That’s when I fell ill in 2004; ever since it has felt snakebit. Most years that’s just my anxiety. In 2021, the last moment that everything was relatively normal was the evening of … Continue reading

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Therapy, Redux

A year ago today, I went back to therapy; the last time I’d been in therapy in a sustained way was 1996 to 1998. Early in 2020, I heard about the upcoming publication of a book I thought might be … Continue reading

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Myalgic Encephalomyelitis and COVID-19: Can I Be Vaccinated?

Content warning: TMI, mental health. Several friends have asked me whether I can be vaccinated and I’ve answered them individually. I’ve even written about it a couple times and stopped short of hitting the post button because the potential for … Continue reading

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Rattle & …umm

That awful moment where you lift the new bottle, and the sound of the tablets shifting says “this is the wrong brand.” The manufacturer discontinued the formulation of metoprolol ER I’ve taken for years, and I found that the first … Continue reading

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