Tag Archives: Chimp

How to Clean a Bathroom (with Severe ME/CFS)

Let’s say you have severe ME/CFS, and you’re married to someone who has a full time job, is your sole caretaker, and because of the severity of your illness, is also chief cook, bottle washer, launderer, yard maintenance guy, and … Continue reading

Posted in House & Home, ME/CFS | Tagged , , , , | 29 Comments

Losing My Voice

A conversation at our house recently: “So when you think of things that the illness has cost me, things that were a big part of my identity, things that I loved to do, what’s the first thing that comes to … Continue reading

Posted in Life Before, ME/CFS | Tagged , , , , , , , , | 22 Comments

Brain No Go So Good

“I’m writing an entry about my cognitive dysfunction, and I thought I’d ask you about whether there’s anything about it you notice. Wait, I asked you this last week, didn’t I?” “Yes. And I suppose that’s an anecdote in itself.” … Continue reading

Posted in ME/CFS | Tagged , , , , , , , , , , | 29 Comments

A Thousand Things

If you’re a healthy person, how many things do you think you do per day? Your to-do list at work might have a half-dozen things on it, but I’m talking about more than that. Maybe you run a few errands … Continue reading

Posted in ME/CFS | Tagged , , , , , , , , , | 71 Comments


One of the more difficult things to deal with about being this ill is the feeling of uselessness imposed by my physical limits. Even as long as I’ve been ill, I’ve never quite gotten over the guilt of not being … Continue reading

Posted in Chimp, Life Before, ME/CFS | Tagged , , , , , , , , , | 23 Comments

A Love Note to Congressman Daryl Metcalfe

“I don’t believe any legitimate voter that actually wants to exercise that right and takes on the according responsibility that goes with that right to secure their photo ID will be disenfranchised…[W]e have a lot of people out there that … Continue reading

Posted in ME/CFS | Tagged , , , ,

One Foot in Front of The Other

I was once a runner. I wasn’t always. I took it up after I left NYU in 1995. I’d been teaching myself to cook at college, and turning out to be unfortunately, deliciously good at it, so the second half of … Continue reading

Posted in Life Before, ME/CFS | Tagged , , , , , , , , | 30 Comments