Author Archives: Jocelyn

To Those Newly Diagnosed With ME/CFS: Four Things I Learned the Hard Way

Posted on November 30, 2011 by Jocelyn

I hit a nerve with my “Nothing” post about what I did (and mostly what I didn’t do) after I was diagnosed. And many of the reactions I heard from others touched on the number one, most important, know-this-if-nothing-else piece … Continue reading →

Posted in ME/CFS | Tagged , , , , | 83 Comments

Nothing

Posted on November 12, 2011 by Jocelyn

For every ailment under the sun There is a remedy, or there is none; If there be one, try to find it; If there be none, never mind it. -Mother Goose Rhyme What do you do when you’re diagnosed with … Continue reading →

Posted in ME/CFS | 52 Comments

A Rant About the Illness Narrative

Posted on October 13, 2011 by Jocelyn

Over the past seven years, I have had various people tell me, here and there, that they find me “brave” or “inspirational.” And it seems like the sicker I’ve gotten, the more I’ve heard it. I don’t want to sound … Continue reading →

Posted in Chimp, ME/CFS | Tagged , , , , , | 44 Comments

Further Adventures in IRIS

Posted on September 22, 2011 by Jocelyn

My first entry on this subject, “Everybody Gets Through IRIS,” is here, and a third, “The End of IRIS,” is here. My immune system is still freaking out for fun and profit. Yes, it’s true, we’ve reached the six-week mark … Continue reading →

Posted in ME/CFS | Tagged , , | 18 Comments

The Lightning Bug and The Lightning

Posted on August 31, 2011 by Jocelyn

“The difference between the almost right word & the right word is really a large matter–it’s the difference between the lightning bug and the lightning.” -Mark Twain A while back, I came across the ad at right via the Vintage … Continue reading →

Posted in ME/CFS | 19 Comments

“Everybody Gets Through IRIS.”

Posted on August 18, 2011 by Jocelyn

There’s a second entry on this topic, “Further Adventures in IRIS,” here, and a third, “The End of IRIS,” here. That’s what Dr. Cheney told me at my appointment in April. IRIS, approximately, is what happens when your immune system … Continue reading →

Posted in ME/CFS | Tagged , , , | 16 Comments

Managing the Quotidian

Posted on August 8, 2011 by Jocelyn

A few people have asked me what I do all day. What I do, of course, is tightly limited by my small store of energy. “Bedridden” describes me pretty well in general, but I do shift between bedroom and dayroom, … Continue reading →

Posted in ME/CFS | Tagged | 12 Comments

Voting in Vivint Gives Back: Conejo Valley Friendship Circle Disqualified

Posted on July 20, 2011 by Jocelyn

This is the fifth entry in a series about vote compensation in Vivint Gives Back. Here are entries one, two, three, and four. I found on rising this morning that half a dozen people had sent me the news that Conejo Valley Friendship Circle … Continue reading →

Posted in Contests | Tagged , , , , , , | 16 Comments

Paying for Votes in Vivint Gives Back: Video Proof, Payment Proof, An Ongoing Graph

Posted on July 18, 2011 by Jocelyn

This is the fourth entry in a series about vote compensation in Vivint Gives Back. Here are entries one, two, and three. Helen Watkinson made a video of herself completing one of the gWallet/RadiumOne Social offers on July 16th. She sent … Continue reading →

Posted in Contests | Tagged , , , , , | 3 Comments

Paying for Votes in Vivint Gives Back: Emptying Out gWallet

Posted on July 17, 2011 by Jocelyn

This is my third entry about vote compensation in Vivint Gives Back. Here’s the first entry and here’s the second (which is just a graph). Vivint has all of this information in hand. I thought I’d do an exhaustive search of … Continue reading →

Posted in Contests | Tagged , , , , , | 8 Comments