Category Archives: ME/CFS

My Weapons-Grade Insomnia

Posted on May 8, 2011 by Jocelyn

This is the first of a couple entries about my ongoing struggle with insomnia. Part II is here. The insomnia is what’s going to eventually kill me. I know you’ve probably heard someone say, “Nobody ever died of insomnia,” but … Continue reading →

Posted in ME/CFS | Tagged , , , | 25 Comments

How it Began – Part IV: The Crash and The Aftermath

Posted on April 24, 2011 by Jocelyn

This is the final entry in my ME/CFS “origin story.” Here are Part I, Part II, and Part III. We arrived back in California on Thursday night. I had already planned to take Friday off to recuperate from the trip. Saturday, May … Continue reading →

Posted in ME/CFS | Tagged , , , , , | 27 Comments

The Post-Appointment Post

Posted on April 16, 2011 by Jocelyn

The information contained in this post is my interpretation of Dr. Cheney’s recommendations for me. This is not medical advice. Please don’t change your treatment plan based on anything in this post. The previous two times we’ve done the drive … Continue reading →

Posted in ME/CFS | Tagged , , , , , , , , , | 18 Comments

None Detected

Posted on April 8, 2011 by Jocelyn

Just heard Chimp gasp in the other room while opening the mail. My XMRV results are back. I came back “none detected” for culture and for serum antibodies. I’m pretty disappointed, although I know, of course, that this doesn’t mean … Continue reading →

Posted in House & Home, ME/CFS, Uncategorized | Tagged , , , , | 6 Comments

How it Began – Part III: Chicago Once Again

Posted on April 4, 2011 by Jocelyn

This is the third entry in my ME/CFS “origin story.” Here are Part I, Part II, and Part IV. Seven months into my marketing job at the California Tree Fruit Agreement, I was headed to Chicago for the second time in two … Continue reading →

Posted in ME/CFS | Tagged , , | 15 Comments

How It Began – Part II: Chicago

Posted on March 20, 2011 by Jocelyn

This is the second entry in my ME/CFS “origin story.” Here are Part I, Part III, and Part IV. The rest of the winter of 2003-4 passed uneventfully. Come spring, I was in Chicago for the Food Marketing Institute trade show for work … Continue reading →

Posted in ME/CFS | Tagged , , , , , | 14 Comments

How it Began – Part I: The Flu Shot

Posted on March 19, 2011 by Jocelyn

This is the first entry in my ME/CFS “origin story.” Here are Part II,  Part III, and Part IV. You say you want to spend the winter in Firenze You’re so afraid to catch a dose of influenza You live your life like … Continue reading →

Posted in ME/CFS | Tagged , , , | 20 Comments

The Fact of Fingerprints

Posted on February 27, 2011 by Jocelyn

Is this a Paul Simon song, or is it a Los Lobos song? Who can say? Of all the symptoms I’ve experienced over the past six years, fingerprint destruction has to be the weirdest. I first heard it mentioned as … Continue reading →

Posted in ME/CFS | Tagged , | 33 Comments

Fever! (Ba-da-bump)

Posted on February 26, 2011 by Jocelyn

If you’ve never seen Rita Moreno and Animal’s version of “Fever” before, enjoy. I’ve had a fever for five days now. It’s nothing major thus far – 99.0 is as high as it’s gotten – but I usually run around 97.5. … Continue reading →

Posted in ME/CFS | Tagged , , , | 3 Comments

The CFIDS Association of America’s Foot-in-Mouth Disease

Posted on February 25, 2011 by Jocelyn

The CFIDS Association of America should be having a banner week. Last Friday, the scandalous PACE trial, promoting cognitive behavioral therapy and graded exercise therapy for ME/CFS, came out in The Lancet, which was an opportunity to come out swinging if ever … Continue reading →

Posted in ME/CFS | Tagged , , | 20 Comments