-
Archives
- April 2022
- March 2022
- February 2022
- March 2021
- October 2020
- May 2020
- April 2020
- August 2016
- August 2014
- July 2014
- June 2014
- May 2014
- March 2014
- February 2014
- January 2014
- December 2013
- November 2013
- September 2013
- August 2013
- July 2013
- June 2013
- May 2013
- April 2013
- March 2013
- February 2013
- January 2013
- December 2012
- November 2012
- October 2012
- September 2012
- July 2012
- June 2012
- May 2012
- April 2012
- February 2012
- January 2012
- December 2011
- November 2011
- October 2011
- September 2011
- August 2011
- July 2011
- June 2011
- May 2011
- April 2011
- March 2011
- February 2011
- January 2011
-
Meta
Category Archives: ME/CFS
Hindsight
Living with a disease of unknown etiology is, let’s say, problematic. The lack of a well-defined cause stymies efforts toward a cure, and opens up a gaping void that gets filled, at best, with wide-ranging science, but more prosaically with … Continue reading
Posted in Life Before, ME/CFS
Tagged acne, ADD, ankylosing spondylitis, antibiotics, anxiety, childhood, Chimp, cognitive dysfunction, crash, Dad, diagnosis, disability, etiology, history, PCOS, regret, vertigo, work
15 Comments
Good Days and Bad Days with ME/CFS
Inspired by Change4ME Au’s Good Day/Bad Day series, I thought I would take good day/bad day shots of my own. So here is a little look at each, although as with almost everything in ME/CFS, it’s more complicated than it … Continue reading
Posted in ME/CFS
Tagged Chimp, clothing, food poisoning, fried, good day/bad day, hair, makeup, Mom, photos, pressure sensitivity, sleep
18 Comments
Histamine Sensitivity and ME/CFS: A Plan of Attack
[Note added 3/31/22: This is a complex post with a long series of exchanges, but it doesn’t include some factors we didn’t know at the time. Because of improperly installed drywall, our house had a mold problem behind the walls … Continue reading
Posted in ME/CFS
Tagged 23andMe, alpha lipoic acid, antihistamines, B12, Brazil nuts, Cheney, colostrum, DAO, doxepin, fennel, folapro, food, Gabapentin, gels, glutamate, glutathione, hawthorn, headache, Histame, histamine, ImmunoPro, LDN, magnesium, MAO, mirtazapine, olive oil, P5P, quercetin, Sam-e, Seroquel, sleep, turmeric, VIP, wormwood
24 Comments
Prandial Problems
I hated my mother’s bunny jello mold. She bought it before my brother or I were born, thinking that when she had kids, it would be fun to make them bunny-shaped jello. And it probably would have been, for most … Continue reading
Posted in Life Before, ME/CFS, Uncategorized
Tagged beef, bunny, chicken, childhood, Chimp, Dad, fish, food, histamine, jello, lamb, meat, Mom, sleep, vegetarianism, Wahls protocol
33 Comments
My Worst Year: Theda and Thomas and Me
Trigger warning for discussion of suicide. This summer, two well-known ME patients, Theda Myint and Thomas Hennessey, took their lives. I didn’t know either of them personally. Theda was well-known through her “Help Theda” facebook page, and was a very … Continue reading
Posted in ME/CFS
Tagged bedridden, blood, cancer, charity air ambulance, Cheney, Chimp, crash, HGH, history, Mom, pheochromocytoma, side effects, sleep, suicide, Xyrem
65 Comments
Inch by Inch
Even though my vocation for more than a dozen years was food, I’m a relative latecomer to vegetable gardening. It wasn’t something my parents did – I remember tomatoes a couple times, I think, and an excellent accidental watermelon one … Continue reading
Posted in ME/CFS
Tagged Chimp, daily routine, food, garden, herbs, house & home, vegetables
21 Comments
How to Clean a Bathroom (with Severe ME/CFS)
Let’s say you have severe ME/CFS, and you’re married to someone who has a full time job, is your sole caretaker, and because of the severity of your illness, is also chief cook, bottle washer, launderer, yard maintenance guy, and … Continue reading
Posted in House & Home, ME/CFS
Tagged bath, Chimp, cleaning, daily routine, house & home
29 Comments
The Post-Appointment Post, 2013, Part II
Part I is here. Nasal VIP wasn’t the only thing that Dr. Cheney and I talked about this year. I’m sharing this grab bag of questions and answers because I know I always learn from what other patients ask him. … Continue reading
Posted in ME/CFS
Tagged adrenal support, adrenaline, anatabine, blood, Cheney, colloidal silver, corona radii, Cortef, crimson crescent, fever, fingerprint destruction, glutathione, high sulfite, leaky gut, methylation, oxygen, P5P, panic attack, Romberg, Sam-e, selenium, sleep, SOD, supply/demand mismatch
19 Comments
The Post-Appointment Post, 2013, Part I
It’s taken me much longer than usual to write this post because I got the idea of transcribing the recording we made of the appointment as a way to help me write. We’ve made a recording every year, but this … Continue reading
Losing My Voice
A conversation at our house recently: “So when you think of things that the illness has cost me, things that were a big part of my identity, things that I loved to do, what’s the first thing that comes to … Continue reading
Posted in Life Before, ME/CFS
Tagged childhood, Chimp, history, Mom, music, performance, singing, stress, symptoms
22 Comments