Category Archives: ME/CFS

Prandial Problems

Posted on November 5, 2013 by

I hated my mother’s bunny jello mold. She bought it before my brother or I were born, thinking that when she had kids, it would be fun to make them bunny-shaped jello. And it probably would have been, for most … Continue reading →

Posted in Life Before, ME/CFS, Uncategorized | Tagged , , , , , , , , , , , , , , , | 32 Comments

My Worst Year: Theda and Thomas and Me

Posted on September 29, 2013 by

Trigger warning for discussion of suicide. This summer, two well-known ME patients, Theda Myint and Thomas Hennessey, took their lives. I didn’t know either of them personally. Theda was well-known through her “Help Theda” facebook page, and was a very … Continue reading →

Posted in ME/CFS | Tagged , , , , , , , , , , , , , , | 65 Comments

Inch by Inch

Posted on August 31, 2013 by

Even though my vocation for more than a dozen years was food, I’m a relative latecomer to vegetable gardening. It wasn’t something my parents did – I remember tomatoes a couple times, I think, and an excellent accidental watermelon one … Continue reading →

Posted in ME/CFS | Tagged , , , , , , | 21 Comments

How to Clean a Bathroom (with Severe ME/CFS)

Posted on July 20, 2013 by

Let’s say you have severe ME/CFS, and you’re married to someone who has a full time job, is your sole caretaker, and because of the severity of your illness, is also chief cook, bottle washer, launderer, yard maintenance guy, and … Continue reading →

Posted in House & Home, ME/CFS | Tagged , , , , | 29 Comments

The Post-Appointment Post, 2013, Part II

Posted on June 16, 2013 by

Part I is here. Nasal VIP wasn’t the only thing that Dr. Cheney and I talked about this year. I’m sharing this grab bag of questions and answers because I know I always learn from what other patients ask him. … Continue reading →

Posted in ME/CFS | Tagged , , , , , , , , , , , , , , , , , , , , , , , | 19 Comments

The Post-Appointment Post, 2013, Part I

Posted on May 30, 2013 by

It’s taken me much longer than usual to write this post because I got the idea of transcribing the recording we made of the appointment as a way to help me write. We’ve made a recording every year, but this … Continue reading →

Posted in ME/CFS | Tagged , , , , , , , , , | 17 Comments

Losing My Voice

Posted on March 28, 2013 by

A conversation at our house recently: “So when you think of things that the illness has cost me, things that were a big part of my identity, things that I loved to do, what’s the first thing that comes to … Continue reading →

Posted in Life Before, ME/CFS | Tagged , , , , , , , , | 22 Comments